This was written the afternoon of April 5th.
I have exactly two hours to take a shower, wash my hair, and write a 5-minute story for tonight's Story Slam that at the moment I don't even feel like going to, but I have to, because I promised I would, and also because friends of mine are going to be there and I am making a concerted effort to not ditch out on social plans like I've developed a habit of doing.
Still, my instinct is to not want to go to this event. I've been in sort of an all-day freakout. For one thing, I am massively, terrifyingly behind in everything important in my life -- a job search (at the top of the list), writing, getting ready for this conference I have to go to at the end of April, planning for my summer theatre production, updating my website, getting back into the swing of booking gigs... I can't handle how my life has spiraled out of control and off track. I seriously wish I had a case manager, like disabled people do, to help me manage my tasks and figure out what to do every day so that I'm a productive member of society. I'm pretty sure that there are mentally challenged individuals who are functioning at a MUCH higher level than I am right now, and who could do without a case worker so that one could be freed up for me to repair my total lack of forward motion. Because honestly, I FEEL disabled by my inability to conquer any of these tasks that SHOULD be the focus of my life. I don't understand how I've gotten so off-track. I walk around in a state of shame and mortification about this ALL THE TIME, every minute of every day.
Secondly, I am back to being utterly penniless -- I have stuff I desperately need to pay for, and no money to do so. Prescriptions at Walgreen's, phone bill, bus pass, groceries I've run out of, money I borrowed from friends, etc. Freaking out about that too. I discovered two shirts that I can return to Target to get about $20 to put back into checking, so I'm going to do that tomorrow. I need the shirts, but I need the money more. Beyond that, I have no upcoming source of income. That's why I was supposed to get myself some work a month ago. Even if I CAN nab sitting jobs or temp jobs, the paycheck isn't going to come in until weeks from now, which means weeks without being able to get stuff I need.
Third, I went to the doctor the other day, where it was discovered that my weird blood tests from this past fall are only getting weirder, instead of less weird, which is disturbing...and what's more disturbing is that the doctor said that because she can't identify any reason for my hemoglobin and hematocrit to be so perpetually low, and because it's not good to not KNOW the cause of chronically low red cells, the next step from here would be to have a bone marrow biopsy. To say that I am SUPER NOT ENTHUSIASTIC ABOUT THIS is the understatement of the year. There is pretty much worldwide agreement out there that bone marrow biopsies are THE most painful medical procedure a person can undergo with the exception, possibly, of childbirth and amputation. I am so, so not up for this. Seriously, not. If I think about it, I start to panic and cry, like, BIG time, so I need to not think about it. La la la la la, kittens puppies rainbows, kittens puppies rainbows.
I convinced my doctor to let me try a month of iron supplements plus a changover from Omeprazole (for GERD) to Zantac (they're two different kinds of acid reflux drugs, and Zantac spares more calcium and nutrients) to see if that brings my hemoglobin back up before committing to a bone marrow biopsy, so I just started doing that, but if she doesn't see improvement, she's going to want me to have the test of scary horribleness. I am so hoping that these two things help. I also started reading tons of articles online, and it SEEMS like it is not rare for people who are a) overweight, b) low thyroid, and c) suffering from chronic illness to have low hemoglobin without other causes, so maybe someone could just...write this off as my own personal quirk and let it go? The problem with that, of course, is that the low hemo is probably why I'm so godforsaken tired. I dunno. I can't think about it anymore without getting upset.
***This journal entry was written two weeks ago, and somehow I got distracted and never posted it. There were other entries written both before it and after it that have ALSO not gotten posted: apparently I have Delayed Posting Syndrome or something. Sorry. I will try to be better about that, and I'll try to catch people up, even though as the days go by, these entries become more and more outdated. Sorry again.***
Out of the blue, with no explanation, my workout yesterday was...incredible. Amazing. I don't know why. I don't know what happened, I don't know what changed, and I certainly don't have ANY guarantee that this will ever happen again, EVER, but...yesterday was the first day, LITERALLY, in THREE SOLID MONTHS that I was not in pain while I was at the gym.
Let us backtrack for a moment, since I've given fast, drive-by info in status updates but not in a blog. Since the beginning of January, I've been in near constant pain while working out. Not only have I been getting shin splints so bad they've reduced me to tears every single time I go to the gym (and I mean it -- everyone at my gym has had to witness me WEEPING on the treadmill, or while stretching. There have been days when I cried AUDIBLY, my legs hurt so much. There was a day I put my face down in my arms on a foam floor mat and just sobbed, for 20 minutes. Luckily that dramatic moment happened in the wee hours of the morning, but still.), but I've also been suffering through low back pain, hip pain, and these weird, inexplicable side stitches and stomach cramps. Every single workout has been a battle between my desire to push through the agony because I want so badly to be burning the calories and staying fit...and the desire to make the pain stop; to just give up and go home. Every single workout has left me in a state of anxiety and terror: what if by pushing through the pain I'm permanently damaging my legs and back? What if pushing through is going to make the pain worse, not better? What if this pain never goes away, and I'm stuck with an inability to comfortably do any exercise at all, forever? What if I do quit walking and ellipting, and I gain back all the weight I lost, and negate all the fitness gains?
I have, over the past 3 months, done everything a human can do for shin splints -- I've wrapped my legs in ace bandages, I've tried a sample of Rock Tape, I've done stretching upon stretching upon stretching, I've iced, I've rubbed, I've taken Tylenol (I'm allergic to naproxen and ibuprofen), I've taken herbal remedies, I've gotten chiropractic, I've rested, I've changed up my fitness routine, I've taken days off, I've lowered my workout intensity AND my workout length -- and nothing has helped. Also, since the pain always hits mere minutes into starting up the treadmill (usually by minute #6 I'm feeling it), I've had to stop treading, get off and stretch some more, get back on, wait until the pain is agonizing again, get off again and stretch some more...and because of the breaking up of my treadmill time and all the stretching, what used to be 80 minutes spent at Snap Fitness is now sometimes 3 hours. It takes ALL NIGHT to get through my workouts, because they require so many interruptions to deal with the pain. I timed myself on several occasions, and found that in the first hour I was at Snap, I usually only spent about 15 of those 60 minutes actually working out. I know -- would that not drive anyone insane? Would it not make anyone want to give up altogether?
Furthermore, the length of my workouts has thrown off my already bizarre body clock even more, so that my bedtime has shifted into 5 and 6 a.m., and my wake time has ended up at 12 noon or even later, which is horrible - I always feel like I'm missing most of the workday, when people are up and in their offices, when stores are open, when the world is alive. So that's been detrimental. AND, despite my best efforts to keep burning calories and not let the amount of exercise I get decline, I HAVE been gaining back weight. I've regained about 7 pounds, which LUCKILY isn't really visible (I don't think), but it makes me feel like crap about myself.
The triumverate of painful and unsatisfying workouts plus regained weight plus poor sleep hygiene is no doubt a major cause of the intense, profound sadness and depression I've been dealing with lately. I have completely and totally not been myself. I mean, I haven't been the person I've wanted to be in a long, LONG time -- way prior to this drama -- but things have gotten so, so much worse recently. I've just been...ashamed and appalled at my total lack of a life. I have been living at the bottom of a pitch-black hole. I haven't accomplished ANYthing, I have had NO attention span, I have been lonely beyond what words can describe, I've felt rejected to the point of just...cosmic PUNISHment, and I've HATED myself with a seething, raging hatred...and I've felt utterly hopeless and clueless as to how to fix this.
I ended up seeing a physical therapist last week who was really kind and gentle, and took my leg pain very seriously. He did all kinds of strength tests on me, and after each one exclaimed (in what sounded like a genuine tone), "WOW, you're strong!". He didn't patronize my concern about my workouts - he seemed to be pleased that I was so committed to my workouts. If I sound surprised that a health practitioner would treat me so compassionately, it's because until recently, health practitioners did NOT treat me compassionately. Um, pretty much ever. I got the archetypal responses that obese people get, most of the time -- which is to say, everything was blamed on my weight, no matter what. Thyroid problems. Ear infections. Chest pain. For most of my life, none of my health concerns were given any creedence, because I was the Fat Lady. And Fat People don't deserve decent healthcare.
Anyway -- so this was a nice departure from that. The PT guy didn't mention my weight at all, not once, during our appointment. He complimented my choice of running shoes (I brought in both pairs to show him what I've been walking in -- I am alert and responsible that way), and praised my knowledge of stretching routines. He gave me additional stretches to do, which I've been doing, but in general, he didn't have any major answers for how to get the shin pain to go away -- he reassured me, though, that if I'm not in agonizing pain AFTER my workout (which I'm not -- the pain starts out awful, and slowwwwly gets somewhat better if I stick it out), then I'm probably not causing myself permanent damage. He said that he'd be more worried if the pain continued even after I'd stopped walking -- which it doesn't. I mean, my shins hurt like phuk if someone presses on them, or tries to massage along the tendons, but they don't hurt in the splinty way if I'm not in motion, which apparently is a positive thing.
SO -- that is what I've been going through over the past 3 months. On top of all of THAT, as you may have read in my facebook statuses (stati?), I've been crushed by a relapse of Chronic Fatigue Syndrome, and/or possibly some kind of resurgence of the symptoms I've had when I've worried that my thyroid was off -- that is, the symptoms I am very familiar with from 20 years now of CFS flare-ups and thyroid malfunction. So I took myself in to the doctor yesterday and get labs drawn. My results were exactly the same as they've been EVER SINCE my doctor told me this past September that "wow, these are disturbing blood test results" -- ie, super-low hemoglobin, hematocrit, MCH, MCV, with super-HIGH sed rate, and normal ferritin. The same lab results that got me sent for a whirlwind of tests this past autumn, including the colonoscopy, to figure out if I had cancer, or a tumor, or a terrible intestinal disease. In other words, I continue TO THIS DAY to have a FREAKISH lack of red blood cells, and MASSIVE systemic inflammation, and no one knows why, STILL. Going gluten-free has not changed anything, at all. The amount of vitamins I take (ie, metric tons) and the amount of exercise I do (metric tons) has had no effect. I remain in a state that resembles deathly, chronic, reactionary anemia. With no answers. When I got the test results, I started crying. I am so frustrated. I guess I should be grateful I'm not, you know, ACTUALLY dead, but still. If no one can figure out what the motherofgod is wrong with me, the recurring health issues I live with will NEVER get a chance to go away. I worry already that the second half of my life will be increasingly compromised by the toll these symptoms have taken on me -- that they have worn down my autoimmune system so much, that all my cells are so very old and tired and creaky, I will be susceptible to all kinds of much more horrible diseases as I get older, that I'll be so fragile and vulnerable -- and so far, no one has any ideas how to change my fate. So the best I can do is to try to make myself strong like an ox, which is a huge reason I've been exercising like crazy, or trying to. But even THAT has been compromised.
Which brings us back, after A VERY LONG DIGRESSION, to the shin splints and their relations.
So anyway, out of the blue -- without any rationale or reason -- I get this ONE AFTERNOON, yesterday, of suddenly having a pain-free workout. I felt so good on the treadmill, I didn't want to stop. I wanted to walk as long as I humanly could do so, just to soak in how wonderful it felt to move easily and happily. I was so AWARE of NOT BEING IN PAIN -- I mean, it was shocking. The way that NOT having pain present affected me -- the way it brought back my energy and my enjoyment of walking in this gigantic WHOOSH -- was so intense, it made me realize how profoundly and systemically I've been affected by that pain. Like, I don't think I even "got" before yesterday how much chronic pain had been altering everything about my body. I don't think I fully realized that I haven't had, like, ONE MOLECULE of endorphins in the past 3 months, so no WONDER I've been so immobilized by depression and anguish -- there has been no BENEFIT to any of the exercise I've been pushing myself to do! I've been Sisyphus, pushing the rock up the hill only to be crushed by it day after day! I don't think I realized how much pain had changed my posture, or how limited and restricted my movement had become, until it wasn't there, and the old me was back for a moment -- the free-moving, fast-paced, strong, capable me. It was just...amazing. Amazing to get a break from how I've felt for three months. I walked for 110 minutes because I could. I would have gone for longer except that I truly had to get home and do some other stuff. But the minute I started walking home, I wished I didn't have any other obligations. I wanted to just...keep...moving.
I have no idea what my workout later tonight will feel like. For all I know, I'll be back to shin splints and side cramps and agony. I have no guarantee that there will EVER be a repeat of yesterday. I really hope there will. I'm crossing my fingers.
I would write more, because there is lots more to say, but I have to get ready to go see a show tonight. More eventually, and here's to the deep, abiding hope for another workout that feels good!